2018 Is Off To A Bad Start

I knew 2018 had some nasty surprises for me but I expected to make it out of January before I got hit by the truck of life again! In my last post, I wrote that I suspected that my PRRT was starting to near the end of it’s effectiveness and, as it turns out, I was right. I had a scan about a week ago and was hoping for good news but unfortunately, the tumors in my liver are growing again. 2018 is off to a bad start.

The Bad News

I had my scan last week and yes, the tumors are growing again. It’s so disappointing since the typical person often gets around 3 years of stability (no growth) after being treated with PRRT and I’ve only gotten 2 years. I know everyone is different but I was hoping to be normal for once. πŸ™‚Β  I was even hoping to squeak 5 years out of the treatment. Such is life. You can read about my experience with PRRT here. It was a very effective treatment for me.

My Plan For 2018

Well, I just wrote a blog post aboutΒ my plans for 2018. I guess I will need to revise some of that! Still, I am doing what I can. My plan is to play the cards that I’m dealt to the best of my ability and to be the best husband and father that I can be. I plan to fight as hard as I can to beat this cancer and to live my life to it’s fullest. Nothing in life is guaranteed but that’s my plan.Β 

My Options

I haven’t gotten the discs for the scan yet but I will be sending them off to Dr. Liu at the Rocky Mountain Cancer Center as soon as I get them. I will also be sending the discs to Texas where I got my PRRT. Finally, I will be meeting with my Oncologist at Duke Cancer Center in early February. I am hoping to get some sort of plan in place. I think that I have 4 options which are chemotherapy, embolism, surgery or my last 2 doses of PRRT. As most people know who have been reading this blog, chemotherapy doesn’t typically work on neuroendocrine cancer. Carcinoid cancer is a type of neuroendocrine cancer so, it didn’t work for me. I’ve also read that there are some new immunotherapies available. I’m going to look into this as well.

There Is No Silver Lining To Cancer

There is no silver lining to cancer but good can come from bad. Well, I have a story of good coming from bad. I hadn’t gotten the bad news for more than 2 hours and the wonderful leaders of my church were at my house praying for me, Lisa and David. So many people in my church have been praying for us, so many friends on Facebook have supported our little family and, of course, family and close friends. It was encouraging to have the leaders of our church support us so visibly. I was so happy that David was able to see that people care for us in our church. There are so many bad examples in the world. I’m glad he saw some good examples. I’m glad he got to see good men putting their faith into action. So, no silver lining but definitely good coming out of bad, wouldn’t you agree? πŸ™‚

I will keep you posted,
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  1. Hi Ed, thank you for sharing your news. I’m glad you have such good support from your church and you have support from your followers too. I’ll be praying that your medical teams guide you to the best next steps. Sending zebra hugs to you and your family from Philadelphia.

  2. Agreed Ed, agreed. I am Praying for YOU, for your family and we KNOW Prayer works . .

    I am putting my “Bet” on you Ed! You have what it takes to survive and to thrive. You have the Spirit, the Love! and the Support! There are options too and that is a VERY good thing

    All of our Love and Prayers Ed, my Zebra Brother . . .

  3. Ed, i’m so sorry to hear that. I pray that they go down. I left you a message on facebook and sent you a friend request. You won’t recognize the name though.

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