It’s my 2 year blog-o-versary. So, I want a gift. <<joke>> 🙂 I need advice. Yup. I’ve hit a number of dead ends, done tons of research, spoken with many doctors (some of who were part of carcinoid teams), been on message boards and now. I need advice about my carcinoid cancer.
I have stage IV carcinoid cancer. It is in my G.I. Tract (hind end – colon area), my bones (femur, ribs, sternum), and my liver. The tumors in my liver are huge. 12 cm is the largest. The tumors are spread throughout my liver and I think about 40% or more of my liver is tumor.
I am currently taking everolimus (afinitor) and it has held back most of the tumor growth…although some have grown a bit. My oncologist is suggesting embolization of the liver which seems like a good choice considering that I cannot have a de-bulking surgery.
If you know of anyone who has or has had this sort of tumor load and has fought it successfully then please leave a comment or email me. 🙂 I am currently looking into DCA but I would like to know if anyone else has been successful or knows of somebody who was successful in slowing or reversing tumor growth.
I have one request. I know that there are plenty of alternative therapies out there and I am sure that there are some that have worked on various forms of cancers. My request is that if you know of something that works on carcinoid cancer (it is non-active, hind end) then please send it along but not unless you’re sure it has worked. Links would be great or emails or blog referrals. Thanks 🙂
Spread The Word
If you would be kind enough to share this request on your social media pages I would be eternally thankful. Even if you only leave a link on some other blog it would be great. I don’t have a twitter or facebook account but if you would re-post or re-blog this it would help so much. Maybe, if you have time, you can just leave a comment and let me know as well so that I can say thanks. 🙂
Stay Strong & Keep Fighting,
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