Well, about a week or so ago I ended up back in the hospital with my usual issues. If you have Net Cancer (neuroendocrine cancer) then you’re probably aware of Carcinoid Syndrome. It is a syndrome that is a result of chemicals secreted into the blood stream by the tumors. Here’s a quote from Mayo Clinic.
The most common signs and symptoms include:
Skin flushing. The skin on your face and upper chest feels hot and changes color — ranging from pink to purple. Flushing episodes may last from a few minutes to a few hours or longer.Flushing may happen for no obvious reason, though sometimes it can be triggered by stress, exercise or drinking alcohol.
Facial skin lesions. Purplish areas of spiderlike veins may appear on your nose and upper lip.
Diarrhea. Frequent, watery stools sometimes accompanied by abdominal cramps may occur in people who have carcinoid syndrome.
Difficulty breathing. Asthma-like signs and symptoms, such as wheezing and shortness of breath, may occur at the same time you experience skin flushing.
Rapid heartbeat. Periods of a fast heart rate could be a sign of carcinoid syndrome.
Any how…. I have the opposite problem, I suffer, as well as many of my fellow Net Cancer patients do, from severe constipation. So bad that I end up in the emergency room with severe intestinal blockages. I think many of you know this about me already. I’ve blogged about it before and you can read it here. In that post I spoke about the bottle of magnesium citrate they gave me. I always try to pass on things that have worked for me in the hope that they may work for you if you have similar problems.
Back To The Hospital
So, yup… I ended up in the hospital again. Sadly, I have to travel an hour to get proper medical treatment. The hospital 5 minutes from my house refused to treat me unless I consented to surgery. The worst part of that was that the decision for surgery was decided over the phone! :O The doctor was driving at the time. Can you believe that one??? :O The hospital 30 minutes from my house used the notes written by that hospital 5 minutes from my house to refuse to help me. Worse yet, the ambulance will not drive me an hour to the hospital that I need to go to. So, Lisa drove an hour to the hospital.
You Need To Be The Squeaky Wheel
I know this goes against the grain of so many people but, when you go to the ER, you need to be the squeaky wheel. I was sitting there in agony for hours and started noticing people who arrived after me going in. So, we asked, for some reason, they had put me toward the bottom of the list. When we asked why, they didn’t answer but simply said, we’ll get you a room. :O Seriously, how long were they going to let me sit there in agony with an intestinal blockage???!!! Why was I being passed over???? Well, the moral of the story is that you must be the squeaky wheel.
My New Meds
I’m actually writing this to share with you the meds that I’ve been taking. I mentioned in one of my previous posts that the doctors had given me magnesium citrate. It was the liquid form and I was taking it often when I got in trouble. It tastes pretty gross and I was starting to take it quite often!
I started trying to find out how much I could take at one time and stumbled upon this. It’s magnesium citrate but in pill form. If you’re looking to buy something like this pay attention because there are all sorts of variations on the market and this is the only one that I could find that was pure magnesium citrate. All of the others seemed to have other types of magnesium mixed in with it. I take this 3 times a day with colace and it seems to be keeping me out of the hospital for the most part. I don’t know if this will work for you but I wanted to pass it on.
By sharing this kind of information with each other, we strengthen each other and, maybe, help others through a tough time.