I just received my second full dose of Sandostatin a little more than a week ago. I have been told that this may slow, if not reverse, the growth of my tumors. I have also been told that it is considered a weak growth inhibitor by itself and should be paired with other medicines. I haven’t been told which medicines those are yet but, I am looking into it. It feels like I’m blind folded and bumping into furniture. Since this is the suggested remedy from doctor I am following her advice but, I am still looking into things further.
I had gotten my first shot (full dose) about a month ago and everything went fine although it really played havoc on my stomach…yuck. As far as other side effects it seems that I’m lucky and have not had any of these issues. Here’s a list of side effects for your reference. The list came from here and here.
Call your doctor at once if you have any of these serious side effects:
- Slow or irregular heartbeats;
- Gallbladder problems (stomach pain);
- Pancreatitis (pain in the upper stomach or back, nausea, vomiting, fever, bloating, yellowing of the skin or eyes);
- Thyroid problems (may be detected by blood tests);
- Low blood sugar (headache, confusion, drowsiness, weakness, dizziness, fast heartbeat, sweating, tremor, nausea); or
- High blood sugar (increased thirst and urination; flushed or dry skin; drowsiness).
Less serious side effects may include:
- Nausea or vomiting;
- Mild stomach pain or gas;
- Constipation; or
- Pain or irritation where you injected the medication.
You can learn more about Sandostatin here. Sandostatin or Octreotide mimics a natural hormone in the body called Somatostatin. My understanding is that somatostatin reduces the release of growth hormone and therefore inhibits the growth of the carcinoid tumors. Sandostatin is also supposed to reduce the symptoms of carcinoid syndrome but, I feel worse on the medicine than I do off of it. There are a number of published reports and papers regarding Sandostatin and it’s use to inhibit tumor growth. You can read about them here.
As you know, I am getting conflicting information from various doctors and so the jury is out regarding the effectiveness of Sandostatin on my tumors. I will keep you informed and I am continuing to look for more effective therapies and or treatments everyday. I just signed a release to have DNA tests performed on my tumor biopsies. This is being done to find the MOST effective medications to help me rather than simply trying things blindly.