I have been diagnosed for a while now and I feel like I haven’t gotten any clear explanation of what disease I really have. No clear medical direction. A lot of verbal medical mumbo jumbo spoken in doctor’s offices but not even a single clear pamphlet. So…..I am trying to focus my attention on researching exactly what disease I have and what this means to me.
I have found out that carcinoid and neuroendocrine tumors are a subset of endocrine tumors/cancers. So, as I see it, the endocrine system must be very important. Any how, as part of my continued focus on getting healthy, and fighting my cancer, I came across the fact that BPA is an endocrine disruptor. Do you know what that means? I didn’t. That’s why I’m posting a warning to neuroendocrine and carcinoid patients on the dangers of BPA and other endocrine disruptors.
It’s all About the Endocrine System.
First, I am realizing that I haven’t seen a clear description contrasting the difference between neuroendocrine tumors and carcinoids and for that matter other endocrine cancers. In addition, how are they the same? I’m also realizing that there is no clear guidance as to what this means to me regarding my cancer and how I should change my behavior. I feel like I have been flying blind…drinking juice….eliminating meat and animal proteins….eating more fruit and veggies…getting shots of Sandostatin…(and now they’ve stopped after only 2 shots) and they want me to have chemo. What is going on?
I’m sure eating better makes me healthier but, how does it affect my cancer? I’m starting to feel that I am in the middle of a guessing game. So, why the warning to neuroendocrine and carcinoid patients? Because…..I think I have been misdirected. I don’t think the misdirection is intentional but, I don’t see any information on “detoxing” your endocrine system or “nutrition” for the endocrine system. In fact, it has never even been mentioned and I haven’t been directed to any literature at all. It seems that until recently all anyone wanted to do was inject me with Sandostatin and rush me out of the office.
I have decided to try to take a back some control by educating myself. In that light, here’s a bit of general information and good link to get started learning about endocrine tumors and cancers.
An endocrine tumor is a growth that affects the parts of the body that secrete hormones. Because an endocrine tumor starts in the cells that make hormones, the tumor itself can make hormones and cause serious illness. ~ http://www.cancer.net/cancer-types/endocrine-tumor
There are several types of endocrine tumors including Adrenal gland tumors (adenomas and adrenocortical carcinoma), Carcinoid tumors (lung and gastrointestinal carcinoid tumors), Islet cell tumor (gastrinoma, insulinoma, glucagonoma, VIPoma, somatostatinoma, and nonfunctioning tumors), Neuroendocrine tumor (Merkel cell cancer, pheochromocytoma, and neuroendocrine carcinoma), Parathyroid tumor, Pituitary gland tumor, Thyroid cancer.
BPA is an Endocrine Disruptor
Do you know what an endocrine disruptor is? I know I don’t. Don’t you think we should and should be educated as endocrine cancer patients? I do. So, here’s what I’ve found so far.
An endocrine disruptor is a substance that alters the function of the endocrine system and consequently causes adverse health effects in an intact organism. It is generally understood that the definition of endocrine disruption encompasses both the endocrine mechanism of action and adverse health effects. ~ http://www.americanchemistry.com/Policy/Chemical-Safety/Endocrine-Disruption?gclid=CMbKieasoLoCFQpnOgodqFkAXw
Here’s a good video explaining the dangers of BPA and how pervasive it is.
Are you horrified? I am…and guess what? BPA is just one of many endocrine disruptors. I will be doing a lot more research on the endocrine system, endocrine disruptors and, I hope, turning things around for me and you.
As I learn more, I will post it here. Also, you can view an infographic that I made on the subject by clicking here.