OK, I have to revise this post. I have been mixing up Nebraska and Vanderbilt. So, to set the record straight, I am going to Nebraska. I think too much is going on. Sorry about the confusion. 🙂
Well, Nebraska is circling again. I had all but given up on them and it seems that I may still be a candidate for radical surgery. In case you are not aware of this, I went to Nebraska seeking a second opinion regarding my carcinoid cancer. Originally, I had been referred to Nebraska by other carcinoid cancer patients who had surgery done by Dr. Eric H. Liu. Unfortunately, he has left Vanderbuilt and moved on and so I was a bit worried that I would be running out of options. Fortunately, Dr. Vargas works there and has a ringing endorsement from Dr. Liu. So, off I went to seek an opinion about radical surgery to fight my cancer. I was excited because they have an entire department set up just to handle carcinoid cancer.
They Fell Off The Map
Well, I spent a hefty sum traveling to and from Nebraska. More than I had. I was examined and they had all of my records and I was told that surgery was a possibility but they needed to review my scans, consult with the carcinoid board and that they would get back to me. They asked me to get new scans and have the results sent to them which I did. And then….nothing. For months. Nothing. I tried calling, emailing, smoke signals, Morse code, carrier pigeon…..nothing! On top of that, I was starting to feel like I was getting the “run around” when I finally did get in touch with somebody. And then…
So, I angered my current oncologist by going to Nebraska. I guess maybe he felt threatened or unappreciated? I have no idea. After I pressed him for one of the tests that Vanderbilt had requested he got angry and actually said “No, and if you don’t like it then they can be your doctors.”. Can you believe that?! I smoothed it over but I was starting to think I was going to end up with NO doctor at all. And then Nebraska called. I was shocked. I had all but given up on them. As it turns out, they wanted the tests and needed further access to my medical records. They were working in the background on my case but never communicated that fact with me. OK, I thought. I’ll roll with this and see where it goes.
I’m Still Being Considered
Yes. I’m not kidding. After all of this, I’m still being considered by Vanderbilt as a candidate for radical surgery to fight my cancer. How radical is radical? A huge chunk of my liver would be removed, maybe lymph nodes, a giant section of my intestines and, as I understand it, anything else they find and can remove without making my condition worse. It looks like I’m on my way back to Nebraska for further tests and more details but it looks very promising. They will remove what they can so, I’m wondering if I will still be on chemo in the end????
The Final Twist
So, the final twist in this saga is that Cancer Treatment Centers of America contacted me and we are off to visit them first. We are going on the off chance that they may propose something less invasive or more effective or both. Isn’t that crazy. Dates are still up in the air but I’m sure they will get back to us soon. UG!
Wish Me Luck,
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